I can walk down the aisles of Barnes and Noble and choose from a plethora of autobiographies written by individuals with Alzheimer's disease. Reading through these books, I could get a fairly good background on the "structure" of the illness: the symptoms, the statistics, the history. I could google "Alzheimer's disease" and read about the complex relationship between plaques and tangles in the brain that leads to memory loss. I could watch "The Notebook." Maybe shed a tear...
But isn't there something missing in this picture? Where are the true voices of the individuals suffering from the disease? Where are the voices of the families, the voices of those that tiptoe through the pressures and provide care for the ailing ones they love?
Autobiographies and movies are scripted. The very nature of these resources hides the meaning of the words they contain. I want the truth.
Any good ideas on how to find answers? How to truly educate the public regarding Alzheimer's disease?
Nov 14, 2009
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